PWN4PWN has opened a narcolepsy registry in collaboration with CoRDS (Coordination of Uncommon Ailments at Sanford) to attach as many sufferers and researchers as potential to advance remedy for narcolepsy. The registry is free for sufferers to affix and for researchers to entry.
Collaborating on this registry and offering info associated to a wide range of matters, corresponding to work, transport, and parenthood, will enable researchers to have quick access to helpful knowledge on people with narcolepsy with a view to develop higher research extra shortly in addition to extra simply discover members for these research. PWN4PWN can even use this info to raised perceive narcolepsy, direct analysis initiatives, and inform affected person help wants.
To study extra details about the registry and CoRDS, go to: https://www.pwn4pwn.org/narcolepsy-register/
PWN4PWN additionally has a personal Fb group the place individuals can discuss experiences with narcolepsy and idiopathic hypersomnia and obtain help. For extra info on PWN4PWN, go to: https://www.pwn4pwn.org/
